|
|
|
|
|
Hello! My name is Kris and this is my daughter Hayleigh's website. I
decided to make a website for Hayleigh on the subject of HHT (Rendu-Osler-Weber disease) mostly
because all of the sites I have seen so far are about the medical facts
and not about the person living with this disorder. So, I wanted to
share our experience with this rare condition and hopefully we will meet
others that we can chat with on this subject. Hayleigh also has Pulmonary arterio-venous malformations (due to the HHT), Asthma, Type 1 Diabetes and was also recently diagnosed with Celiac Disease. You can read her story to find out more about these conditions. Please visit Hayleighbug's Health Journal to read the latest updates. Thank you for coming by and please feel free to look around. We also welcome emails! :o)
Hayleigh Age 6 by Sharon Harris You weren't like other children, And God was well aware, You'd need a caring family, With love enough to share. And so He sent you to us, And much to our surprise, You haven't been a challenge, But a blessing in disguise. Your winning smiles and laughter, The pleasures you impart, Far outweigh your special needs, And melt the coldest heart. We're proud that we've been chosen, To help you learn and grow, The job that you have brought us, Is more than you can know. A precious gift from Heaven, A treasure from above, A child who's taught us many things, But most of all- "Real Love".
Please donate to HHT
research and JDRF!
Please check out Hayleigh's Smile Quilt and Quilt of Love!
|
